Local Donations - Local Support - Independent - Community Oriented

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Monterey County Herald

Civic Duty
by Kathryn M. Nichols

     Multiple Sclerosis is one of those diseases that, despite years of intense study, has not yet yielded its secrets. No one knows what causes it, the symptoms can vary widely from patient to patient, and at present, there is no cure.

People with MS may experience tingling sensations, numbness, muscle fatigue, poor coordination and blurred vision-, the most severely affected may be paralyzed.

The good news is that many people with MS can manage their symptoms and live productive lives. One way in which local people can do this is with help from Multiple Sclerosis Community Services, a Salinas based agency.

The tri-county agency currently aids more than 1,000 people with MS, as well as their families, caregivers and health professionals.

Founded in 1968 by Salinas resident Adele O'Grady, the organization merged with the National Multiple Sclerosis Society to serve Monterey, Santa Cruz and San Benito counties.

In 1986, MSCS broke off from the national organization and became an independent entity, according to Executive Director Connie Ciccarelli.

This means MSCS can use its entire budget to serve local people, said Ciccarelli.

One of the unique aspects of this nonprofit is that it receives no funding from the government, or any state or national organization.

Annual fund-raising events like the Volunteers in Multiple Sclerosis Luncheon and Auction and the O'Grady Pro/Am Golf Tournament add to the budget, as well as private donations, participation in community events and grants from local service organizations.

MSCS provides everything from financial assistance to support groups for its clients. It's also a first point of contact for those seeking more information.

Ciccarelli said it's "frightening and scary" when people are first diagnosed with the disease. In response to that, MSCS last year created a informational video for clients who are newly diagnosed.

"It's been an extremely popular tool," said Ciccarelli. "We've sent copies all over the country."

MSCS provides information and referral for people with MS, linking them to other agencies, depending on their needs. Lists of physicians, home care resources and other resources are available upon request.

MSCS will also provide financial support to those in need for respite and homebound care, medical expenses and adaptive equipment. Emergency aid for housing is also available.

MSCS also loans equipment, like wheelchairs and walkers, at no cost. A lending library is available that includes books, audio and video tapes that can help clients deal with physical and emotional effects of their disease.

MSCS clients and their families can share information and find support with others, and hear guest speakers address issues of concern at regular meetings. Seminars are also held from time to time.

About 50 to 60 volunteers help out with the agency's projects, many of whom have MS themselves or a loved one who is afflicted.

Organization: Multiple Sclerosis Community Services Phone: 758-1663


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MSCS
546 Abbott Street #A -  Salinas, CA.  93901
Phone: (831) 758-1663   Toll Free: 1-866-622-4200
Fax: (831) 758-8380
info@mscs.org