
Monterey County Herald
Civic Duty
by Kathryn M. Nichols
Multiple
Sclerosis is one of those diseases that, despite years of intense study, has not yet yielded
its secrets. No one knows what causes it, the symptoms can vary widely from patient to
patient, and at present, there is no cure.
People with MS may experience tingling
sensations, numbness, muscle fatigue, poor coordination and blurred vision-, the most
severely affected may be paralyzed.
The good news is that many people with MS can
manage their symptoms and live productive lives. One way in which local people can do this
is with help from Multiple Sclerosis Community Services, a Salinas based
agency.
The tri-county agency currently aids more than
1,000 people with MS, as well as their families, caregivers and health professionals.
Founded in 1968 by Salinas resident Adele
O'Grady, the organization merged with the National Multiple Sclerosis Society to serve
Monterey, Santa Cruz and San Benito counties.
In 1986, MSCS broke off from the national
organization and became an independent entity, according to Executive
Director Connie
Ciccarelli.
This means MSCS can use its entire budget to
serve local people, said Ciccarelli.
One of the unique aspects of this nonprofit is
that it receives no funding from the government, or any state or national organization.
Annual fund-raising
events like the Volunteers in Multiple Sclerosis Luncheon and Auction and the
O'Grady Pro/Am Golf Tournament add to the budget, as well as private donations,
participation in community events and grants from local service organizations.
MSCS provides everything from financial
assistance to support groups for its clients. It's also a first point of contact for those
seeking more information.
Ciccarelli said it's "frightening and
scary" when people are first diagnosed with the disease. In response to that, MSCS
last year created a informational video for clients who are newly diagnosed.
"It's been an extremely popular tool,"
said Ciccarelli. "We've sent copies all over the country."
MSCS provides information and referral for people
with MS, linking them to other agencies, depending on their needs. Lists of physicians,
home care resources and other resources are available upon request.
MSCS will also provide financial support to those
in need for respite and homebound care, medical expenses and adaptive equipment. Emergency
aid for housing is also available.
MSCS also loans equipment, like wheelchairs and
walkers, at no cost. A lending library is available that includes books, audio and
video tapes that can help clients deal with physical and emotional effects of their
disease.
MSCS clients and their families can share
information and find support with others, and hear guest speakers address issues of
concern at regular meetings. Seminars are also held from time to time.
About 50 to 60 volunteers help out
with the agency's projects, many of whom have MS themselves or a loved one who is afflicted.
Organization: Multiple
Sclerosis Community Services Phone: 758-1663
More Thankyous and Articles |